Thursday, January 31, 2008


We've been living in a sort of limbo recently. Henry is feeling great, really great. He's playing actively by himself and with his sisters. His energy seems boundless. He's sleeping pretty well at night now too.

Our familial bliss was broken, as we knew to expect, by the oncologist calling to announce the MRI date. It's scheduled for tomorrow, Friday. Tara will be off work and we'll go down to Hopkins together with Henry. It will be a long day for Henry as he will not be allowed to eat anything after midnight except for clear fluids. He will have to be sedated for the duration of the MRI to keep him still. They will do a full brain and spinal scan to determine how effective the treatment has been to date.

Next week he'll have to have a lumbar puncture (spinal tap) in order that the doctors can assess the spinal fluid for tumor dissemination as well.

These two procedures will determine the future course of treatments for Henry. While we worry about the possibility of the chemotherapy to date not having worked, we suspect the answer will not be black or white, but rather a shade of grey, that is to say, we may find it's working a little better or not as well as expected. The doctors have also indicated that our odds will change depending on these outcomes.

Fortunately tomorrow we'll not have to wait long for the results of the MRI. Our oncologist will call us after reading it to give the results.


Anonymous said...

My prayers will be directed towards Henry and his folks, for positive news regarding the treatment he has endured so far.
take care. Hope you can get a little sleep tonight, but would imagine you both will be restless.


Anonymous said...

We will also be praying for all of you tonight and tomorrow. Hugs!!

Anonymous said...

We will be thinking of you and Henry tomorrow. Our prayers and positive thoughts are with you.

Lori and Fred

Anonymous said...

Our prayers are with you, always!

Monica & Glenn

t said...

Wow, it seems so sudden and yet I know you have been waiting forever. I can't imagine the anxiety your family is feeling right now but know that ...just about everybody is praying for little Henry. He has just got to be better.

Much love,

Anonymous said...

God Bless you all and hopefully you will get better news than you would expect. We will be waiting to hear what you find out!.

Love always!
Cousin Susan H.

Anonymous said...

We're pulling for you and praying hard. Keep us posted!

Stevensons said...

From Jane's cousins in California, With all our love we hold you up in prayer as you face Friday. We have prayed from the beginning of Henry's illness for him specifically, for you both Bryan and Tara, your family, the medical team and all your support. We thank God Henry has done so well so far. We will wait with you from 3000 miles away to hear the news.

Deb & Rick

Dave and Lori Silvester said...

We'll be thinking of you today. We've been really anxious for this day to come to know more about what the future holds. Much love and many prayers coming your way today, as everyday. We'll be watching and waiting for the news.

Dave and Lori

Anonymous said...

You will not leave my thoughts or prayers today. God bless you and all that are working with you and Henry today. Loving hugs to you all, MAB

Anonymous said...

You will be in my thoughts every minute today!


Margie said...

I can't image how long a journey this has been for you all already. Our thoughts and prayers are with you all and may hte best news possible come from the MRI today. I look forward to reading your updates each day, Henry and your family are in our thoughts and prayers daily. Know that your support group is even larger and stronger than before.


Anonymous said...

Our thoughts and prayers are with you all today.

Aunt Judy & Michael

Anonymous said...

Henry and you all will be in our thoughts and prayers throughout the day. He is a trooper! Wishing you all the best to get you through this day.

Julie, Brad, Patrick, Andrew and Samantha

Anonymous said...

In my thoughts today...Holly

Anonymous said...

Continued prayers and thoughts for Henry, his family and the entire medical support teams for the very best results to come from procedures.
Much LOVE to all from, Wichita

Paige said...

Tara and Bryan,
Our prayers are with you today and always.
Much love,
The Giles Family