Superman has nothing on my son. He's been hit with so many drugs, chemicals and medicines I can barely keep up with them all. He's had test after test after test and he's been laying in a hospital bed for weeks. Yesterday he lost his hair. Today he had a tube put down his nose, he didn't like it, but he tolerated it. He listened when I warned him it would hurt and did it anyway. We went for CT scan later and he lay there still and waited while 3 people picked at tubes in his chest. The sound of the machine startled me, but he lay there and took it like a man.
I've never been more proud of my son. He's my new superhero.
Contact Us: HenrysChallenge@gmail.com
"Life is Fragile, Love is Not."
- at home (80)
- chemotherapy (55)
- complications (3)
- cycle 1 (36)
- cycle 2 (24)
- cycle 3 (19)
- diagnosis (1)
- fund raising (8)
- golden days (8)
- grief (19)
- Henry's Gift (10)
- high dose 1 (22)
- high dose 2 (10)
- life after Henry (28)
- memorial service (2)
- news (7)
- photos (51)
- post treatment (5)
- radiation (8)
- reflection (30)
- relapse (32)
- st.casimir (15)
- testing (10)
- waning moments (4)
- ways to help (23)
- Wish Trip (73)
Subscribe via email
T-Shirts for Charity
T-Shirts now available at CafePress.com/LifeIsFragile
Johns Hopkins Medicine
Children's Hospital
600 N Wolfe Street
Baltimore, MD 21287
600 N Wolfe Street
Baltimore, MD 21287
Henry’s Favorite Things
- His Family and Friends
- Cruckie
- Dora the Explorer
- Franklin
- Curious George
- Wagon Rides
- Cars (the movie)
- Reading Stories
- Listening to Music
- Firetrucks, Trains, Cars & Trucks
Ways to Help
Contact Maury
Maury is our 'point person'. She is collecting and organizing offers for help. Bless you Maury. You can contact her at mobadger_1@yahoo.com
Blog Archive
-
▼
2007
(76)
-
▼
November
(33)
- Nice Day for a Walk
- Anticipation
- Boys Will Be Boys
- Christmas Preparation
- Amplitudes
- Here's to you, Mastercard
- Restful Day
- Thanksgiving blessings
- Paparazzi
- Priceless
- Waiting for Poop
- Reminders
- Superman
- And So It Goes
- Kind Hearts
- Wholesome Medicine
- New Baseline
- Defenseless
- One Month
- Life Unfolding
- Riding the Tide
- Tiny Bits and Pieces
- New Routines
- Welcome Home!
- A Different World
- No Guarantees
- Good Medicine
- Quick Update
- Sweet Up and Down
- Taking Turns
- A Glaring Omission
- The Battle Within
- Into the Unknown
-
▼
November
(33)
Helpful Information
Days Since Henry’s Second Stem Cell Transplant
Days between 1st and 2nd transplants: 40
Bits of Inspiration...
St. Baldrick’s - Help cure pediatric cancer!
Help raise funds to cure pediatric cancers. Donate in Henry's name here.
Posts
4 comments:
It seems as if you are his superhero as well. It is your strength and example that is leading your son. Let that be a motivation for you to stay strong and positive in the long months to come.
The Remsburg Family
This is so unfair to all of you (especially Henry.) I can only imagine how long the road ahead must seem. Hold on as tight as you can to each other and don't let go. That's what will get you through the hard times.
Henry, you are a hero to us all!
Love,
Shanda
Bryan, Tara and family -
We have been reading this site and following Henry's progress and are touched by Bryan's words of hope and faith. I wish there was more we could do for you all but know that Henry is in our son Joey's healing prayers every night. Joey sends Henry "pink heart healing energy" and we send you all love, too. I have passed on your info to lots of folks who are keeping your family in their prayers.
- Dani, Ben and Joey
Bryan, thank you so much for your detailed updates on Henry. You are an amazing writer and seem to capture the emotion of the day. I laugh, I cry but you give me hope. Yes, Henry is a superhero
susan kroloff
Post a Comment