Thursday, March 27, 2008

The Final Push

Things are going well at the Scheck Household. After being allowed to come home unexpectedly, we quickly got into step with a relatively normal family rhythm. It's become tempting to think of life in another 4 to 5 weeks when this next round of chemotherapy will be over. Life will have its own challenges then, presuming a normal life while knowing that there may be years of holding our breath and waiting, but we'll have our Henry still.

There are still a few hurdles to clear before that time. One more round of high dose chemotherapy with some dangerous side effects. Up to this point, Henry has come through with flying colors and we'll hope for the same. While it's an unpleasant process, his rebound this time has been ever so encouraging. During this next round of chemotherapy, which starts tomorrow, we do know to expect some degree of hearing loss, and we've been told he'll need a hearing aid. We'll also begin discussing the need for Henry to have radiation. This will be the most difficult decision we'll have to make regarding his therapy. Up until now, there has been general consensus on his course of therapy. Things are less clear regarding risks and benefits of radiation. We plan to solicit multiple expert opinions before deciding.

I can't overlook another bit of good news we got recently. On Tuesday, Henry had a spinal tap, the results of which were negative, meaning no cancer cells were present. Though not 100%, this result means it is less likely that the residual abnormality on the MRI is active tumor.

So we're back to Baltimore starting tomorrow. Henry knows it, but doesn't like it. Come to think of it, that's kind of how we feel too.


Anonymous said...

Keep on fighting strong, Mr. Henry! We will continue to pray for you here in Wichita. Our admiration for your amazing family is beyond words... we'll keep praying!!!! =)

rlbates said...

Great news!!!

Anonymous said...

We will keep you in our thoughts and prayers as you start this last round of treatment. He is an amazing, sweet little boy who is loved dearly. Wonderful news from the MRI!

Love, Julie, Brad, Patrick, Andrew and Samantha

granya and DeeDad said...


I hope you have lots of visitors next week - you love to play and entertain - I know it helps pass the time for you and your parents.

We'll be there for you. Home won't be home until you are all back.

Love, Granya and Deedad

Anonymous said...

I know Henry can not be very happy over returning to the hospital.
As always you are all in our thoughts and prayers. Hopefully all this will be over as quick as possible and you are all back home together.

Love always,
Cousins Susan H.

Jen said...

Wonderful news on the spinal tap- good luck with the next round!

Anonymous said...

Great news about the spinal tap results. Praying for as smooth as possible next round of chemotherapy. Also praying for good conferences with consultants in obtaining the information regarding radiation treatment.