Tuesday, February 19, 2008

A nice day

Tara here again with a status update. Henry had a nice day. He played in the playroom for a while this morning, but by noon was in bed and didn't make it out again. He enjoyed his visitors and the toys they brought (thanks, Granya and Miss Susan!). He seems very comfortable, and in good spirits, but very tired.

He ate 3 cookies for lunch but after that didn't drink or eat anything more. Over the last few days he hasn't eaten much but we've been able to get some calories into him with liquids. I took his refusal of liquids as a bad sign, and was not surprised when he complained of nausea tonight. He never actually vomited, but we added a second anti-nausea drug and he settled down for the night. Hopefully he'll sleep well.

We've been told to expect a fever sometime next week. His temp is normal now, but the special implanted mommy thermometer in my cheek tells me that we'll be seeing a fever sooner than that. We've also been warned that next week will be the week that he feels the worst, so we'll continue to take one day at a time and hope that he feels as good tomorrow as he did today.

I don't write as often (or as well) as Bryan but I wanted to take a moment to thank all of you for the support that you've been giving us, the girls, and Henry.


Granya said...

It was great to see Henry yesterday - he is so sweet and welcoming - really enjoys company and gifts. He drifted "in and out" of conversion but appears to handle it all in the best way he can.

He has received yet more gifts and I marvel at the lack of duplication. DIEGO was a big hit yesterday, the vehicle and the DVD.

I will PLUG his toy from the Red Envelope Web Site though. It is a turtle whose shell changes colors at the push of a button. The shell is pierced (in the arrangement of constellations) so, it serves as a night light with stars shining on the ceiling when it is dark. Very Special - an item I will shop for in the future.

Henry, remember that we love you and thank you for the courage and strength that you give us all.

Anonymous said...

Great to hear from you! I know it has to be so very hard to see your little boy go through all this. Such strength he has and what a fighting spirit. He is an inspiration to us all! Thank you for continuing to share with us.
Love to all of you.

Cousin Susan H.

Anonymous said...

Hi Henry! Just wanted to say that we are thinking about you and are sending you lots of hugs and kisses. We miss you! Don't forget to watch the snow fall tomorrow - it looks like its coming our way. Lots and lots of love,
Julie, Brad, Patrick, Andrew & Samantha