Tara and Henry got home this morning about 10:30 or so through the grace of a co-worker of her's, a nice break from driving and some good quality time with the girls. We had a lazy day, cleaning up a bit, preparing the house some for a return with Henry after the first week of chemotherapy, I'm still very anxious about that - even though the Oncologist said we didn't need to do anything beyond washing hands well and frequently and keeping visitors to a minimum I've installed good air filters and put signs up near the doors to remind everyone of hand washing.
A few days ago, I got an e-mail from a friend offering something unique. She offered to be a point person for the offers of help; to make sure that we didn't have 10 people trying to do the same thing, or not knowing what we really needed. We are grateful to her for helping us to make the best use of those offers for help. Please contact Maury via her e-mail address: mobadger_1@yahoo.com. We haven't given her any sort of list or anything, but as we find what we need, we will let her know.
It's only 9, but Tara and I are exhausted. Its another trip to Hopkins early morning tomorrow. We're expecting to get an echo cardiogram (heart test) and audio test (hearing). We have to turn in samples of Henry's urine to ensure his kidneys are working and clearing fluids correctly and get his central line flushed and re-bandaged. We expect to be home in plenty of time to don costumes and get out for some quality Trick-or-Treating as a ghost who will be accompanied by a witch (Anna) and a bumble bee (Sophie). If you watch out your window and see a ghost riding a 'cruckie' you'll know its Henry. :)
By the way - he only noticed the tubes coming out of his chest once today. I told him that they were for the doctors later - and not to pull at them, because that would hurt. He shrugged and said 'OK'. That was it. Amazing.
Subscribe to:
Post Comments (Atom)
Posts
10 comments:
Maury,
My name is Jane Sappington and I am Henry's grandmother.
Thank you for volunteering to be "point person".
What a great and generous gift.
Could you send me your email address please:
jpsappington@comcast.net.
Thanks, Jane
Got my flu shot Monday....there's plenty of vaccine this year, so remember to get yours if you plan on being around Henry and his family.
And way to go Henry for expressing your feelings of wanting to go home. I too am known for always being clear about where I stand regarding a situation. The hospital is the "pits" but unfortunately sometimes it's the place we need to be.
Here's to wonderful nurses and docs taking care of you for the next several days.
nk
Happy Halloween Henry! The party won't be the same without you at school. I miss you and hope you have fun tonight!
Love,
Madalyn
Happy Halloween!
Enjoy the night!
Susan Herren
Bryan and Tara,
Wish we could be there to lend our support also, but it sounds like you are being well-cared for by friends and family there. I've really appreciated the information on this site as well as the personal stories that you're shareing about how you all are doing. We are love you and are praying for all of you.
Love,
Karen
Hi Henry,
HAPPY HALLOWEEN!! Have lots of fun trick-or-treating and eat lots of candy. I'll be thinking of you!
Love,
Shanda
So glad to hear that Henry is home and is handling the central line like a trooper. Ya'll have fun tonight. I wish I could be there with you. Love, Cousin Fran
Hello Scheck family-
This is a great idea! Henry's very own web-site. How awesome is that. I just heard of the news so I am updating myself on the site. My thoughts and prayers are with you all.
Have a Happy Halloween and don't get belly aches!
Love your friend and co-worker-
Sammi & family
PS
If you all need any help with transportation to and fro JH let me know, I practilly lived there for 2 years. I have excellent hold on to your seat driving skills :-)
on the beltway and Pratt St. I will also email Maury.
Sammi
Dear Brian and family,
We are so sorry to hear the news about Henry. Please know we are praying for you everyday. Also, I work as the assistant kindergarten teacher at St. Mary's school and our kindergarten class is remembering Henry in our morning prayers and special intentions. We would be happy to help out in any way we can. Take care of yourselves and we will keep posted to this website.
Lori, Jim, Elizabeth,Olivia and Annie Balog
(soccer team buddies)
Post a Comment