Tuesday, November 11, 2008

Steroids


Since his diagnosis, over a year, Henry has been the same weight - 20 days on steroids, he's gained over 15 pounds. The change has been extreme. You can see from the pictures here, taken only days apart what it's come to.

 
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This image was a few days after our return from Florida. Making cookies with Mommy.

This one taken just today. The water retention swells his face and makes it so he can't see out of his right eye - he sleeps on that side most often. In the picture Henry is painting a 'project'. One of our favorite activities is putting together little wooden models from the craft store. He loves to spend time painting them. He has no patience for crayons, coloring or markers. But the boy loves to paint these things. He'll spend an hour painting and making sure he covers every bit of visible wood, sometimes with several colors. I just love watching the concentration when he does it. Sometimes you can catch him whispering to himself, "glob", meaning he's got a bunch of paint to spread around.

6 comments:

ms.t said...

As difficult as it was to share those photos...thanks. As I have said before, I HATE CANCER. Thankfully, he is feeling well enough to paint. I would love to see some pictures of his artwork!

Much love to you little H

terra s said...

We enjoy ALL of the photos from Disney and home. I'm sure that it's hard finding time to keep us updated because you want to spend time with little Henry, but thanks for taking the time. I feel like he has become part a big caring family. I keep him and your entire family in my prayers everyday.

Anonymous said...

He's still a beautiful boy and I'm glad to see that he's feeling well enough to concentrate on painting projects! Thanks for keeping us updated.
Love,
Karen

Anonymous said...

Henry we just finished painting our bathrooms and could have used your thoroughness!! I think I skipped a few spots! We are enjoying the photos of your trip - the look on the everyone's faces are priceless - it looks like your sisters really had fun, too!! thank you for keeping us updated-
Hugs to you and your family
Linda and Val

BETH SMITH said...

THANK YALL FOR SHARING THE PICTURES..I'M SO GLAD YOU GOT TO MAKE LOTS AND LOTS OF MEMORIES AT DISNEYWORLD. I DO HAVE A QUESTION AND IF YOU DONT WANT TO ANSWER YOU SURELY DONT HAVE TO I JUST WONDER SOMETHINGS AND I KNOW MY HEART JUST BREAKS FOR ALL OF YOU.AND I DONT EVEN KNOW YOU BUT WOULD LOVE TO ONE DAY MEET YOU. NOW BACK TO MY QUESTION, I WAS WONDERING DOES HENRY EVER ASK OR WONDER WHY HE IS SO SWOLLEN OR HAVE YOU DISCUSSED AS MUCH AS YOU CAN TO HIM.? I STILL BELIEVE OUR GOD IS STILL IN THE MIRACLE BUSINESS SO I DO BELIEVE...AND I SURELY AM PRAYING SO HARD FOR YOUR FAMILY AND LIL HENRY I WISH I COULD JUST GIVE HIM A BIG HUG AND MAKE ALL OF THIS GO AWAY. IT JUST ISNT FAIR NOT IN MY HUMAN EYES BUT I DO TRUST GOD HAS A PLAN IF I CAN SAY ONE THING LIL HENRY HAS SO TOUCHED MY FAMILY MY HEART..I LOVE YOU GUYS IN CHRIST... BETH ELIZABETH.SMITH@SUNTRUST.COM

Anonymous said...

I know it is hard to see Henry swollen from the steroids. Poor baby! He is such a fighter and an inspiration to all of us. We continue to pray for miracles as we do not understand why beautiful children like Henry have to go thru this. We think of all of you often and look forward to your emails and pictures. Our love is with you always!
Cousin Susan H.