Monday, February 2, 2009


It's been a couple of days since Henry's seizure and while his mental acuity is returning to normal, physically he's not feeling himself. His energy level is considerably lower. He wants to be more active than his body will allow right now. Several times today, he's been motivated to play, and in fact has begun activities, only to resign moments later to the couch.

We've begun an anti-seizure medication called Keppra and we've increased his steroid to four times what his recent maintenance dose. This seems to be controlling his vomiting but has not yet piqued his appetite yet. It has started to agitate him and to disrupt his sleep even more - last night he was up for about four hours. This is taking it's toll on all of us.

We've postponed resuming his chemotherapy regimen for the month in order to allow a review of his most recent scan by our doctors in Baltimore. If the tumor is growing, we will opt for an alternative chemotherapy. If it's not significantly different, we will stay the course.

Tara and I are home today, trying to recuperate physically and emotionally. We feel like sitting and staring at the wall, but being busy is a helpful antidote.


John Middlebrook said...

Thanks for the update Tara and Bryan. I just saw the post from Saturday a few minutes ago (now late Monday here). I hope you are hanging in there and we are thinking about you. Colin says this in his prayer that we do every evening when we are together, "Thank you for our food, friends and family. Amen". "And Henry", never forgets to add it.

ms.t said...

Hey Guys. Just letting you know that I am thinking about you all and praying that Henry is feeling better today. Everyone at the office is sending their love and prayers your way. If there is anything that we can do, please ask. I'm just down the road and can be there in a heart beat any time of the day.

Anonymous said...

God bless all of you. We are praying for you and for the strength you need to deal with this.

The Coccia's said...

It’s been a while since we have written, but not a day goes by when we do not think about Henry, you and the girls. We have a picture of Henry on our fridge and every time I open it, (which is quite often) I say a prayer for your family. We continue to pray for God’s healing love to surround you all and to give you strength. May you find comfort knowing that you are not alone; you are surrounded by God’s loving Angel’s.
God Bless You!
Robyn, Dean, Sammy & Chloe