Wednesday, February 18, 2009

Difficult Day

Henry vomited in his sleep again last night and had another mild seizure. He complained all night of headaches that we had difficulty controlling until morning when we'd given him more morphine in 8 hours than we've had to the entire time he's been taking it.

After he was finally able to rest, he slept on the couch for hours, waking pleasantly. This pleasantness quickly turned to irritability and agitation which persisted throughout the evening. I took him up to bed around 6pm and he fell immediately asleep.

It seems clear that we've passed the tipping point of his disease. Previously his headaches have been manageable with small doses of morphine, sometimes even Tylenol. We anticipate some teetering, some easier days mixed with hard, but this difficult reality is beginning to permeate all things.


Anonymous said...

We wish there was something comforting that we could tell you to ease the heartbreak that you are feeling. Our thoughts and love are with you. It is fantastic that you are taking time to write down conversations that you are having with Henry. Those are priceless.

Sorry that the pain is getting harder to manage. We had Sophia on a fentanyl patch to give her some form of constant pain coverage--combined with two other oral pain medications that we alternated around the clock. It worked for Sophia well, but don't know if it can be combined with morphine since Sophia wasn't able to have morphine.

Our hearts are with you. Henry is obviously surrounded by love. He is lucky to have such a wonderful family.

Lots of love,
Shirley, Wayne, Fiona, and Angel Sophia

Anonymous said...

Bryan and Tara,
My heart is breaking for all of you!
Hugs and Kisses to all,
Susan V.

Michelle said...

Bryan, Tara, and girls,

Love and prayers from Vermont. I think of you every day.


Anonymous said...

I am praying for peace and comfort for all.

Robyn Coccia said...

We send you huge hugs filled with lots of love!!! You are all in our prayers!

Love Always,
Dean, Robyn, Sammy and Chloe

Justin said...

There is nothing useful I can say to you, other than that you remain in our daily prayers.
Kayla and I always read the blog, and we will keep on hoping for a miracle...

Jen said...

Just sending supportive thoughts.

Anonymous said...

My thoughts and love are with all of you during this difficult time.

Nancy in NC

femail doc said...

I am so sorry to hear that day-to-day normal is slipping away. My thoughts are with you.

Anonymous said...

Our family is lifting Henry up to our Lord in prayer. We think of you every day and hope for a wonderful gift of healing.

Mike, Jane, Tom & Wade Niday

rlbates said...

Thinking of you all.

Anonymous said...

Our heart breaks with all of you. We cannot imagine the pain you are going through. Wish there were words that could be said that would ease your pain. We are praying for you, your family and for Henry to be comfortable.

Kara and Mike Skelly

Anonymous said...

Bryan, Tara, and Family,

We can only pray for comfort for Henry, and the rest of the family during these difficult times. Remember that regardless of the challenge in front of you, God is with you always. Rely on Him for your strength to endure this. We don't always understand the "why".

Kiss Henry a few times for us. :)

Dirk, Shannon, & Logan

Anonymous said...

We send loving thoughts your way.
Hugs from Linda and Val

Anonymous said...

God Bless all of You!
Aunt Reba