Henry slept almost all night last night with a little help from Ativan. He woke at 6:45 this morning in a good mood and watched TV for a couple of hours. He asked to be alone, I took him upstairs and he dropped quickly off to sleep.
We should hear today from our oncologist regarding the CT scan. His sleepiness is worrisome to us. It seems the harbinger of his decline and that's very difficult to accept. We're of course hopeful that there are other chemotherapies that will make a difference for him.
Anna and Sophie have been great. They are very gentle with Henry and understanding of his erratic moods and demands; understanding of the disparity that exists in what we expect of him versus them. Their laughter and playfulness has lightened the mood and been very welcome and inspires Henry to join in.
Contact Us: HenrysChallenge@gmail.com
"Life is Fragile, Love is Not."
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Johns Hopkins Medicine
Children's Hospital
600 N Wolfe Street
Baltimore, MD 21287
600 N Wolfe Street
Baltimore, MD 21287
Henry’s Favorite Things
- His Family and Friends
- Cruckie
- Dora the Explorer
- Franklin
- Curious George
- Wagon Rides
- Cars (the movie)
- Reading Stories
- Listening to Music
- Firetrucks, Trains, Cars & Trucks
Ways to Help
Contact Maury
Maury is our 'point person'. She is collecting and organizing offers for help. Bless you Maury. You can contact her at mobadger_1@yahoo.com
Helpful Information
Days Since Henry’s Second Stem Cell Transplant
Days between 1st and 2nd transplants: 40
Bits of Inspiration...
St. Baldrick’s - Help cure pediatric cancer!
Help raise funds to cure pediatric cancers. Donate in Henry's name here.
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4 comments:
Your daughters inspire me...you must be very proud of them! Praying for a good report on the CT scan.
Michelle in VT
Just wanted to say we are thinking of all of you. You have been our role model through our entire ordeal with Kaden. You have been so strong! I wish our 7yr old was handling it as well as your daughters are. Kaden has to go to clinic Wed for a check-up, so we are back to Johns Hopkins in the morning. We'll be passing through Hagerstown on our way. Take care.
Marty, Stephanie, Payton & Kaden Sharpless
http://www.caringbridge.org/visit/bigboykaden
password: sharpless
Tara & Bryan,
My heart goes out to all of you. The girls seem to be soo strong and sooo understanding. You have a wonderful family and I pray for you often. May God give you the strength to stay hopeful and strong.
Tanya Farris
You all are in my thoughts and prayers. I know that this is not a choice just one of those things you have to get through one day at a time, but your patience, hope and steadiness is amazing.
We will keep praying until this ugly cancer goes away.
God Bless,
Rachel
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