Steady

It's been a couple of days since Henry's seizure and while his mental acuity is returning to normal, physically he's not feeling himself. His energy level is considerably lower. He wants to be more active than his body will allow right now. Several times today, he's been motivated to play, and in fact has begun activities, only to resign moments later to the couch.

We've begun an anti-seizure medication called Keppra and we've increased his steroid to four times what his recent maintenance dose. This seems to be controlling his vomiting but has not yet piqued his appetite yet. It has started to agitate him and to disrupt his sleep even more - last night he was up for about four hours. This is taking it's toll on all of us.

We've postponed resuming his chemotherapy regimen for the month in order to allow a review of his most recent scan by our doctors in Baltimore. If the tumor is growing, we will opt for an alternative chemotherapy. If it's not significantly different, we will stay the course.

Tara and I are home today, trying to recuperate physically and emotionally. We feel like sitting and staring at the wall, but being busy is a helpful antidote.